Monday, January 22, 2007


I Wish it could have lasted longer!! The pain and confusion is back! I was feeling SO GOOD for 10 days, and then WHAM, all was back in a flash. I knew it was back when I got lost going to the mall, my face was burning and etc. Has this happened to any of you after taking Tysabri? Don't get me wrong, I'm grateful for 10 great days free of everything, and I know Tysabri is not a cure, but darn it, it felt so good!!!!!
Can't wait for Valentine's Day for my next infusion.
Write me and tell me if this has happened to you.

Friday, January 19, 2007


It's been 7 days since my last infusion and Thank God, I HAVE NO PAIN!!!
I have been out shopping, trying not to over do it, and no pain.
I have less burning pain in my face.
And I'm not such a "dizzy blonde" any more.
My next infusion is Valentine Day, I can't think of a better gift than my Tysabri infusion.

Tuesday, January 16, 2007

I had my second Tysabri infusion on Friday the 12th of Jan.!!!! That was 4 days ago and guess what? No Pain yet!!!!!! Thank you Tysabri!!! My burning pain in my face in lesser, the burning bands are gone, and my arthritis in my left foot has not come back!!! Yet! I spoke the the nurse that was giving me my infusion and she was telling me that 2 ladies that walked with canes were no longer using their canes!!! I was with another lady, having her infusion, and after her first infusion she could feel the carpet on the floor. I guess she has no feeling on the bottom of her feet. I am just so excited and can't wait until Feb.14th, when I have my next infusion!!!!!! I belong to two MS groups and I am like a walking advertisement for Tysabri, urging them to be an advocate and get strarted with Tysabri!! Please let me know if any of you are having some good side effects from Tysabri!

Friday, January 5, 2007

I Have A Question

Since taking Tysabri I have had something happen to me and I want to know if anyone taking Tysabri or anyone with MS has had this happen to them. Here it goes: Inside my body I feel like jello that is quivering. I've had it happen to me twice. It's not a shocking feeling, I've had those. I look around to see if we are having a earthquake. (live in Southern California) dah!!!
I've had this feeling lying down and sitting up. Not a dizzy feeling, I've had that. Let me know if this has happened to you.

Wednesday, January 3, 2007

Zoey & Cyndee

Zoey & Cyndee
Originally uploaded by cyndmill.

Well, it's the new year and I've decided to keep a journal about what is happening in my life, and living with MS.
Last December I had my first infussion of Tysabri. I was so nervous! I saw the doctor, had my regular exam, and then a very nice nurse put in the IV, found the vein the first time, and we sat there talking for one hour while I was having the infusion and then while she was observing me, we talked somemore! It was so EASY!!! I had no reactions at all. That night and the following day, I just couldn't believe that all my pain was gone! It only lasted 2 days, but, hey, 2 days of no pain!! I'll take any day with no pain. I will be receiving my second infusion next Friday!!!! I am so Excited!!! What if I had no pain for 3 days!!!!
Laurens' (Living with MS) blog, has inspired me to do this blog. She is so inspiring!! Thanks Lauren!
I would like to hear from other MS patients, so feel free to send comments. Thanks!